Sue Miers AM established the National Organisation for Fetal Alcohol Syndrome and Related Disorders (NOFASARD) in 1999 as a result of her personal experience caring for a child with Partial Fetal Alcohol Syndrome and her struggle to find information and appropriate support services in Australia. Since 1999, the Organisation has been largely run on a volunteer basis. Sue has worked tirelessly, along with the support of a small dedicated group of volunteers, to have FASD recognised as a disability in Australia, to advocate for the rights and interests of people living with FASD and to provide information and support to individuals and families at a grassroots level. During this time, the Organisation has represented the interests of FASD consumers in a variety of national and international forums. Sue Miers was awarded the Member of the Order of Australia in 2006 in recognition for her services to the community through the establishment of NOFASARD, to community education and to reconciliation.